Hello all,
Here’s a time line of last week
Clayton had a great day on Monday. He was almost back to his old self again and Tues was even better. In fact, he actually ate real food for the first time in weeks. I was so exited I almost danced on the table in the dinning hall.
He started back on his chemo on Tues along with another dose of the avastin.
We met with Dr. Brizzel on Wed morning and he looked at us after the scope procedure and said “what tumors?” It was really hard to hold back the tears of joy. All the doctors and nurses that were in there were so compassionate, I think they were holding them back too. He commended Clayton on how well he has followed instruction and contributes his commitment to following the rules and said that he was the best model for the case study because he was the only one who had not had to be hospitalized for fluids and a feeding tube.
He told us that he saw Clayton’s blog and loved it!! He praised all the hard work that our friends have put into it. We then went to day 2 of chemo. Clayton’s parents and Jessica came to visit. It was good for her to see where he is living and the clinics. We were even able to take her back with him to watch him receiving his radiation therapy.
He ate a little more solid foods that day too, but by Thursday morning he was feeling pretty nauseated. It’s been a really tough road since then. We came home on Thursday evening since they closed the clinic on the 4th. This, by the way, is also changing the last date of his treatment to Thurs 17th instead of Wed.
Each day from Wed on he struggled more and more to drink his only lifeline, the Carnation drinks. Friday, Sat, and Sun were quite a blur. He was only able to drink 2 of them on Friday and Sat too. By Sun. they were history. We decided to go back a little early in case we decided to take him to get some fluids. The doctor on call suggested for us to go to the ER but Clayton didn’t want to. He was so afraid that they would put him in the hospital. He toughed it out another night and we went in an hour early on Mon. to start the process of hydration. He had lost almost 15 pounds over the 3 day break. Although he was already on 3 different meds for nausea, nothing was working at all. They gave him 2 bags of fluids and he looked a little better but was still very sick.
We have to go on Tues and Wed for fluids again and if the nausea isn’t any better than they will give him some through the veins at the same time. We are to meet back with Jennifer on Thurs morning to recheck his progress.
Sorry it took so long to get caught up. My main focus has been taking care of him.
Thanks a lot.
Paege